Ségolène Aymé

Ségolène Aymé is a medical geneticist and the founder of Orphanet – a portal for information on rare diseases and orphan drugs. She is also the chair of the Topic Advisory Group on rare diseases at the World Health Organization, as well as European Union Committee of Experts on Rare Diseases. Dr. Aymé and is the editor-in-chief of Orphanet Journal of Rare Diseases (OJRD).